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Who Receives Home-Based Perinatal Palliative Care: Experience from Poland

dc.contributor.authorKorzeniewska-Eksterowicz, Aleksandra
dc.contributor.authorPrzysło, Łukasz
dc.contributor.authorKędzierska, Bogna
dc.contributor.authorStolarska, Małgorzata
dc.contributor.authorMłynarski, Wojciech
dc.date.accessioned2016-04-14T11:44:24Z
dc.date.available2016-04-14T11:44:24Z
dc.date.issued2013
dc.identifier.issn2314-6133
dc.identifier.urihttp://hdl.handle.net/11089/17794
dc.description.abstractContext. The current literature suggests that perinatal palliative care (PPC) programs should be comprehensive, initiated early, and integrative. So far there have been very few publications on the subject of home-based PC of newborns and neonates. Most publications focus on hospital-based care, mainly in the neonatal intensive care units. Objective. To describe the neonates and infants who received home-based palliative care in Lodz Region between 2005 and 2011. Methods. A retrospective review of medical records. Results. 53 neonates and infants were admitted to a home hospice in Lodz Region between 2005 and 2011. In general, they are a growing group of patients referred to palliative care. Congenital diseases (41%) were the primary diagnoses; out of 53 patients 16 died, 20 were discharged home, and 17 stayed under hospice care until 2011. The most common cause of death (56%) was cardiac insufficiency. Neurological symptoms (72%) and dysphagia (58%) were the most common clinical problems. The majority of children (45%) had a feeding tube inserted and were oxygen dependent (45%); 39 families received psychological care and 31 social supports. Conclusions. For terminally ill neonates and infants, perinatal palliative care is an option which improves the quality of their lives and provides the family with an opportunity to say goodbye.pl_PL
dc.language.isoenpl_PL
dc.publisherHindawi Publishing Corporationpl_PL
dc.relation.ispartofseriesBioMed Research International;2013
dc.rightsUznanie autorstwa 3.0 Polska*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/pl/*
dc.titleWho Receives Home-Based Perinatal Palliative Care: Experience from Polandpl_PL
dc.typeArticlepl_PL
dc.page.number1-7pl_PL
dc.contributor.authorAffiliationMedical University of Lodz, Department of Pediatrics, Oncology, Hematology and Diabetologypl_PL
dc.contributor.authorAffiliationHome Hospice for Children of Lodz Regionpl_PL
dc.contributor.authorAffiliationUniversity of Lodz, Institute of Psychologypl_PL
dc.identifier.eissn2314-6141
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dc.contributor.authorEmailaleksandra.korzeniewska-eksterowicz@umed.lodz.plpl_PL
dc.identifier.doi10.1155/2013/652321


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