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The Institutional Conditions of the Life of People with Intellectual Disabilities (ID) in a Residential Care Facility

dc.contributor.authorNiedbalski, Jakub
dc.date.accessioned2022-06-01T11:11:20Z
dc.date.available2022-06-01T11:11:20Z
dc.date.issued2022-05-31
dc.identifier.urihttp://hdl.handle.net/11089/42040
dc.description.abstractThe paper is intended to show a system of institutional care for people with intellectual disabilities, which is characterized by a kind of ambivalence. The whole disquisition is based on two fundamental and dichotomous categories: control and subordination versus autonomy and independence. Each of these categories is connected with one of two perspectives within which a residential care facility can be captured. The first one arises from Goffman’s vision of a total institution, where a unit is presented as an objectified subject of other people’s actions, revealing a situation of isolation and personal dependence. The second perspective presents a model of relationships between the personnel and their charges; it is characterized by an individualistic approach toward the needs of people with disabilities regarding their right to autonomy and self-determination. The confrontation between these two perspectives and areas of issues is discussed in this paper.en
dc.description.abstractCelem artykułu jest ukazanie, charakteryzującego się swoistą ambiwalencją, systemu instytucjonalnej opieki nad osobami z niepełnosprawnością intelektualną w Polsce. Cały wywód opiera się na dwóch zasadniczych i dychotomicznych kategoriach: kontroli i podporządkowaniu versus autonomii i niezależności. Każda z tych kategorii jest powiązana z jedną z dwóch głównych perspektyw postrzegania domu pomocy społecznej. Pierwszą, wywodzącą się z goffmanowskiej wizji instytucji totalnej, w której jednostkę przedstawia się jako uprzedmiotowiony obiekt działań innych osób, demaskując sytuację izolowania i zależności osobistej. Drugą reprezentuje model relacji personelu i podopiecznych, charakteryzujący się indywidualistycznym podejściem do potrzeb osoby niepełnosprawnej, z poszanowaniem jej prawa do autonomii i samostanowienia. Konfrontacja tych dwóch perspektyw i obszarów zagadnień jest przedmiotem rozważań w niniejszym artykule.pl
dc.language.isoen
dc.publisherWydawnictwo Uniwersytetu Łódzkiegopl
dc.relation.ispartofseriesPrzegląd Socjologii Jakościowej;2pl
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0
dc.subjectautonomyen
dc.subjectcare facilityen
dc.subjectcontrolen
dc.subjectinstitutional careen
dc.subjectintellectual disabilityen
dc.subjectinterpersonal relationshipsen
dc.subjectautonomiapl
dc.subjectkontrolapl
dc.subjectdom pomocy społecznejpl
dc.subjectopieka instytucjonalnapl
dc.subjectniepełnosprawność intelektualnapl
dc.subjectrelacje interpersonalnepl
dc.titleThe Institutional Conditions of the Life of People with Intellectual Disabilities (ID) in a Residential Care Facilityen
dc.title.alternativeInstytucjonalne uwarunkowania życia osób z niepełnosprawnością intelektualną zamieszkujących domy pomocy społecznej w Polscepl
dc.typeArticle
dc.page.number72-88
dc.contributor.authorAffiliationUniversity of Lodzen
dc.identifier.eissn1733-8069
dc.referencesArndt, Sandra A., Moira Konrad, and David W. Test. 2006. “Effects of the self-directed IEP on student participation in planning meetings.” Remedial and Special Education 27(4):194-207. doi: https://doi.org/10.1177/2165143414544359en
dc.referencesBarnes, Coli and Geof Mercer. 2003. Disability. Cambridge, MA: Polity Press.en
dc.referencesBekkema, Nienke et al. 2015. “‘To move or not to move’: A national survey among professionals on beliefs and considerations about the place of end-of-life care for people with ID.” Journal of Intellectual Disability Research 59(3):226-237. doi: https://doi.org/10.1111/jir.12130en
dc.referencesBjörnsdóttir, Kristin, Guorun V. Stefánsdóttir, and Astriour Stefánsdóttir. 2015. “‘It’s my life’: Autonomy and people with ID.” Journal of ID 19(1):5-21. doi: https://doi.org/10.1177/1744629514564691en
dc.referencesBrown, Fredda et al. 1998. “Selfdetermination for individuals with the most severe disabilities: Moving beyond Chimera1.” The Journal of the Association for Persons with Severe Handicaps 23(1):17-26. doi: https://doi.org/10.2511/rpsd.23.1.17en
dc.referencesCarlson, Licia. 2010. The faces of intellectual disability: Philosophical reflections. Bloomington. IN: Indiana University Press.en
dc.referencesCharmaz, Kathy. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Thousand Oaks, CA: Sage.en
dc.referencesCharmaz, Kathy. 2019. “Experiencing Stigma and Exclusion: The Influence of Neoliberal Perspectives, Practices, and Policies on Living with Chronic Illness and Disability.” Symbolic Interaction 43(1):21-45. doi: https://doi.org/10.1002/symb.432en
dc.referencesChartres, Dianne and John Brayley. 2010. Office of the public advocate South Australia: Submission to the productivity commission inquiry into disability care and support. Collinswood: Office of the Public Advocate.en
dc.referencesCrocker, Allen C. 1988. “Medical-care for adults with developmental-disabilities.” Jama-Journal of the American Medical Association 260(10):1455-1455. doi: https://doi.org/10.3389/fpubh.2014.00083en
dc.referencesDuBois, Brenda and Karla K. Miley. 2011. “Social Work: An Empowering Profession. 7th Edition. Boston, MA: Pearson.en
dc.referencesDunn, Michael C., Isabel C. Clare, and Anthony J. Holland. 2008. “Substitute decision-making for adults with ID living in residential care: Learning through experience.” Health Care Analysis 16(1):52-64. doi: https://doi.org/10.1007/s10728-007-0053-9en
dc.referencesDunn, Michael C., Isabel C. Clare, and Anthony J. Holland. 2010. “Living ‘a life like ours’: Support workers accounts of substitute decision-making in residential care homes for adults with intellectual disabilities.” Journal of Intellectual Disability Research 54(2):144-160. doi: https://doi.org/10.1111/j.1365-2788.2009.01228.xen
dc.referencesGeniene, Rasa and Egle Sumskiene. 2016. “Reform of the residential care in Lithuania from the perspective of institutional theory.” Socialine Teorija Empirija Politikair Praktika 12:74-89. doi: https://doi.org/10.15388/STEPP.2016.12.9818en
dc.referencesGlaser, Barney. 1978. Theoretical Sensitivity. San Francisco: Sociology Press.en
dc.referencesGlaser, Barney and Anselm L. Strauss. 1967. The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing Company.en
dc.referencesGoffman, Erving. 1961. Asylums: Essays on Social Situation of Mental Patients and Other Inmates. Garden City: Doubleday Anchor Book.en
dc.referencesGoffman, Erving. 1967. Interaction Ritual: Essays on Face-to-Face Behavior. New York: Doubleday Anchor.en
dc.referencesGoffman, Erving. 1979. Gender Advertisements. New York: Harper and Row.en
dc.referencesGonzalez-Rodriguez, Ruben and Maria C. Fernandez. 2017. “Attention to disability in residential care facilities.” Cuadernos de Trabajo Social 30(2):403-415. doi: https://doi.org/10.5093/pi2018a4en
dc.referencesGoodley, Dan. 2000. Self-advocacy in the lives of people with intellectual disabilities: The politics of resilience. Buckingham: Open University Press.en
dc.referencesGranosik, Mariusz. 2006. Profesjonalny wymiar pracy socjalnej. Katowice: Wydawnictwo Naukowe “Śląsk.”en
dc.referencesHarris, Nicola, Antonia Beringer, and Margaret Fletcher. 2016. “Families’ priorities in life-limiting illness: Improving quality with online empowerment.” Archives of Disease in Childhood 101(3):247-252.en
dc.referencesHawkins, Rebecca, Michael Redley, and Anthony J. Holland. 2011. “Duty of care and autonomy: How support workers managed the tension between protecting service users from risk and promoting their independence in a specialist group home.” Journal of Intellectual Disability Research 55(9):873-884. doi: https://doi.org/10.1111/j.1365-2788.2011.01445.xen
dc.referencesHoole, Lucy and Sally Morgan. 2011. “‘It’s only right that we get involved’: Service-user perspectives on involvement in learning disability services.” British Journal of Learning Disabilities 39(1):5-10. doi: https://doi.org/10.1111/j.1468-3156.2009.00563.xen
dc.referencesKelly, Fionnola et al. 2019. “A case-study of policy change in residential service provision for adult people with intellectual disability in Ireland.” Health and Social Care in the Community 27(5):E760-E768. doi: https://doi.org/10.1111/hsc.12803.en
dc.referencesKlepikova, Anna. 2019. “Residential care institutions for people with disabilities in Russia: questioning totality.” Journal of Social Policy Studies 17(3):453-464. doi: https://doi.org/10.17323/727-0634-2019-17-3-453-464en
dc.referencesLennox, Nicholas G., Justine N. Diggins, and Antoni M. Ugoni. 1997. “The general practice care of people with intellectual disability: Barriers and solutions.” Journal of Intellectual Disability Research 41:380-390. doi: https://doi.org/10.1111/j.1365-2788.1997.tb00725.xen
dc.referencesLincoln, Yvonna S. and Egon G. Guba. 1985. Naturalistic Inquiry. Beverly Hills, CA: Sage.en
dc.referencesLonkila, Markku. 1995. “Grounded theory as an emerging paradigm for computer-assisted qualitative data analysis.” Pp. 41-51 in Computer-Aided Qualitative Data Analysis, edited by U. Kelle. London: Sage.en
dc.referencesMahone, Irma H. et al. 2011. “Shared decision-making in mental health treatment: Qualitative findings from stakeholder focus groups.” Archives of Psychiatric Nursing 25(6):27-36. doi: https://doi/org/10.1016/j.apnu.2011.04.003en
dc.referencesMarsland, Dave, Peter Oakes, and Caroline White. 2015. “Abuse in care? A research project to identify early indicators of concern in residential and nursing homes for older people.” Journal of Adult Protection 17(2):111-125. doi: https://doi.org/10.1108/JAP-08-2014-0027en
dc.referencesMeininger, Herman P. 2001. “Autonomy and professional responsibility in care for persons with ID.” Nursing Philosophy 2(3):240-250. doi: https://doi.org/10.1046/j.1466-769X.2000.00065.xen
dc.referencesOlney, Marjorie F. 2001. “Communication strategies of adults with severe disabilities.” Rehabilitation Counseling Bulletin 44(2):87-94. doi: https://doi.org/10.1177/003435520104400205en
dc.referencesPatton, Michael Q. 2001. Qualitative evaluation and research methods. Thousand Oaks, CA: Sage.en
dc.referencesRichards, Lyn. 2005. Using NVivo in Qualitative Research. London, Los Angeles: Sage.en
dc.referencesSaunders, Benjamin, Jenny Kitzinger, and Celia Kitzinger. 2014. “Anonymising interview data: Challenges and compromise in practice.” Qualitative Research 15(5):616-632.en
dc.referencesSaunders, Benjamin, Jenny Kitzinger, and Celia Kitzinger. 2015. “Participant anonymity in the internet age: From theory to practice.” Qualitative Research in Psychology 12(2):125-137.en
dc.referencesShakespeare, Tom. 1996. “Disability, Identity and Difference.” Pp. 94-113 in Exploring the Divide Leeds, edited by C. Barnes and G. Mercer. Leeds: Disability Press.en
dc.referencesStrauss, Anselm L. and Juliet Corbin. 1990. Basics of Qualitative Research. London: Sage.en
dc.referencesSumskiene, Egle and Urte L. Orlova. 2015. “Sexuality of ‘Dehumanized People’ across Post-Soviet Countries: Patterns from Closed Residential Care Institutions in Lithuania.” Sexuality and Culture 19(2):369-387. doi: https://doi.org/10.1177/0081246316678154en
dc.referencesTrip, Henrietta et al. 2016. “The role of key workers in supporting people with intellectual disability in the self-management of their diabetes: A qualitative New Zealand study.” Health and Social Care in the Community 24(6):789-798. doi: https://doi.org/10.1111/hsc.12262en
dc.referencesWahmsley, Jan and Kelly Johnson. 2003. Inclusive research with people with learning disabilities: Past, present and futures. London, New York: Jessica Kingsley Publishers.en
dc.referencesWehmeyer, Michael L, Abery, Brian H., Mithaug Dennis E., Stancliffe, Roger J. 2003. Theory in Self-Determination: Foundations for Educational Practice. Springfield, IL: Charles C Thomas Publisher, LTD.en
dc.referencesWiltshier, Fiona. 2011. “Researching with NVivo.” Forum: Qualitative Social Research 12(1). doi: https://doi.org/10.17169/fqs-12.1.1628en
dc.contributor.authorEmailjakub.niedbalski@uni.lodz.pl
dc.identifier.doi10.18778/1733-8069.18.2.04
dc.relation.volume18


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